A non-update update

I’ve rewritten an update on things, five years post transplant, multiple times and it just doesn’t seem right. Mostly because, our summer was really tough, followed by an even more challenging fall for me and thereby mom.

Good news, my heart is stable. The bad news is that we’ve been dealing with new issues and new symptoms for about every other part of my body. I’ve been having lots of appts, tests/labs then follow up appts trying to chase down what’s going on.

It’s taken the wind out of my sails, and I find myself experiencing what those who deal with chronic illness call the October slide. Basically in fall time, unexplained by science but accepted amongst the medical community, those with chronic illness backslide mentally, physically, emotionally, etc.

So for now, we ask for prayers. And in time we’ll have answers and be ready to share. We trust in God’s faithfulness and we have a good team of doctors chasing things down, so we remain hopeful that Hope will continue to win.

Love, K

One thought on “A non-update update

  1. I can understand these things …… I’m almost 18.5 years post heart tx now, and my labs this past Wednesday showed some potential kidney issues, so a quick lowering of my cyclosporine and more labs this coming week. It’s always something ….. just have to roll with it and pray a LOT!

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