This week we had some victories. Blood work showed an awesome improvement in my cholesterol levels which put me outside the high risk area. My improved numbers were partly due to a new medication on the market that my cardiologist put me on. It involves giving myself an injection every two weeks. We call it “repatha day” in our house, because I usually get a cold for a few days after, so we hold our breath each time I take it, with the hope I don’t get too sick.

Being able to take Repatha was another victory because it was also just approved by my insurance.  Kudos to my doctor for fighting with the insurance company to get my coverage approved. Without insurance it would have cost more than half of my yearly salary for a years supply.

My doctor and I were happy with the victories….

But we have also been fighting some battles lately…

…In the words of my GP, when we adjust medications in what would be considered ‘normal’ fashion, my body auto corrects almost like a driver that over corrects the wheel.

…I started feeling like I was going to pass out all the time.

…My heart rate has not been stable, I drop low and then run high.

…And then there is the chest pain (Angina) that we can’t seem to control. It is usually controlled by Nitro, but it appears that I have developed what is known as Nitro tolerance. We just adjusted another medication in the hopes that will work. But unfortunately, the past 5 days have not been going well…

……and then I was admitted to the hospital last night and will be here at least through tonight. We are playing with medications yet again. My cardiologist is running out of ideas, a new cardiologist who is weighing in thinks it will just a a chronic problem, that has to be managed. But no one has been able to figure out why.

It’s been a long tough road, but even more so this past week. I have  heard multiple doctors tell me that we are running out of medical options and treatments and that I may have to accept that this is as good as it gets. I refuse to believe that the young age of 27, this is what my life will look like. Don’t worry… we are already looking into Johns Hopkins, Cleveland and Georgetown.

Please pray for me and the doctors.  I am specifically asking St. Therese for her intercession during this time.